Usually, the attending physician directly submits their patients to our registry. However, there are occasions where this isn’t feasible due to organizational constraints. For instance, the treating hospital might not be connected to our registry network, or there may be a lack of personnel to carry out the registration.
In such instances, you have the option to register yourself or your child in our registry, significantly supporting our research efforts. Self-registration involves 8 simple steps, which are outlined below. If you have any questions, feel free to contact us anytime.
Register in 8 simple Steps
Getting started
Getting Started
Contact us! We will then arrange a telephone appointment for the medical consultation.
- phone: +49 511 532-9408
- kps-register@mh-hannover.de
Joint Telephone Call
Joint Telephone Call
We will speak with you on the phone for approximately 30 minutes at the agreed time. We’ll explain exactly what we’re researching and show you which research registries or accompanying projects are suitable for you personally. Feel free to contact us if you have any questions!
The Enrollment Package
After the call, we will send you the enrollment package.
The contents of the enrollment package may vary slightly depending on the CPS you have. For example, the oral mucosal swab kit is not always included. In addition, some recipients receive several patient information and consent forms – for example for the CPS registry and the accompanying projects “Liquid Biopsy” and “ADDRess”.
Special Features of Registration in the Fanconi Anemia Registry
If you would like to register yourself or your child for the Fanconi Anemia Registry (FA Registry), there are a few additional things to consider. You can find all the information you need on the Fanconi Anemia Registry website. Clicking on this text paragraph will take you there directly.
