There are no standard surveillance recommendations to date. Patients with Weaver syndrome should undergo regular examinations, particularly with regard to cognitive and speech development, camptodactyly, and muscular hypotonia. If no complications are clinically evident, the examination interval can be lengthened starting in adolescence.
If there is scoliosis, care should be provided in line with orthopedic recommendations.
If any additional abnormalities are detected, other examinations should be conducted as needed and the patient should be referred to specialists.
Patients should be made aware of a potentially increased risk of neuroblastoma. Specific cancer surveillance is not recommended.