We would be delighted if you would register your patients in the CPS registry. The following inclusion criteria must be met:

  • Proven CPS OR
  • Highly suspected CPS

Participation in the Liquid Biopsy and ADDRess accompanying projects is only possible with prior (or simultaneous) registration in the CPS registry. Additionally, the two accompanying projects require the presence of proven CPS; a high degree of suspicion is not sufficient.

On this page, we explain the registration procedure. This process is formally identical for the CPS registry and its two accompanying projects. However, special information and consent documents are available for Liquid Biopsy and ADDRess. All documents can be found in the download area for healthcare professionals.

Required Documents for Registration

Age-Specific Information Leaflet

We aim to inform registry participants about our research work in advance. To ensure optimal comprehensibility, we provide age-specific variants.

Age-Specific Declaration of Consent

Consent to participate in the registry is a fundamental requirement for inclusion. This essential document is also available in age-specific versions.

Initial Registration Form

This form is exclusively for healthcare professionals. It records key data from your patient’s medical history.

Annual Follow-Up Sheet

One of the primary objectives of the registry is medical follow-up documentation. Therefore, we kindly request you to complete our follow-up questionnaire annually.

Biomaterial

The analysis and archiving of biomaterial are key tasks of the CPS registry and its accompanying projects. Therefore, we request that you submit biomaterial during the initial registration and also during follow-up. A separate submission form is provided for this purpose.

Additional Documents

To register your patient, we also require all relevant medical reports, diagnostic findings, and radiological images (including data carriers).

5 Steps to Patient Registration

Handing Out the Information Leaflet

Handing Out the Information Leaflet

Please provide the age-specific information leaflet to the patient. Review the leaflet together and don’t hesitate to contact us if you have any questions. The leaflet will then be kept by the patient.

Joint Completion of the Declaration of Consent

Joint Completion of the Declaration of Consent

Please complete the age-specific declaration of consent with your patient. If applicable, the declaration must be signed by the patient’s legal guardian and by you as the medical staff providing information. The declaration will then be kept in your possession.

Completion of Initial Registration Form

Completion of Initial Registration Form

As the attending physician, you will now complete the initial registration form. You will need anamnestic information and your patient’s diagnostic reports. The presence of your patient is not absolutely necessary.

Submitting the Documents

Submitting the Documents

Finally, please send us the above documents and materials by post.

  • Hannover Medical School
    Clinic for Pediatric Hematology and Oncology – OE 6780
    CPS Registry
    Prof. Dr. med. Christian Kratz
    Carl-Neuberg-Straße 1
    30625 Hannover
    GERMANY

There are special shipping requirements for tumor samples. Please get in touch with us. We will be happy to help you!

Annual Follow-Up

Annual Follow-Up

Please mail the above documents and materials annually:

  • Hannover Medical School
    Clinic for Pediatric Hematology and Oncology – OE 6780
    CPS Registry
    Prof. Dr. med. Christian Kratz
    Carl-Neuberg-Straße 1
    30625 Hannover
    GERMANY

Special Features of Registration in the Fanconi Anemia Registry

If you wish to register yourself or your child for the Fanconi Anemia Registry (FA Registry), there are a few additional considerations. You can find all the necessary information on the Fanconi Anemia Registry website. Clicking on this text will take you there directly.