We believe that a significant number of cancer cases are linked to a genetic predisposition. However, there are still many unanswered questions for those with Cancer Predisposition Syndromes (CPS), such as:

What are the benefits of early detection, as recommended by experts?
Are there correlations between genotype and phenotype?
How do cancer risks vary across different age groups?
What is the prognosis for cancer in patients with a genetic predisposition?
What specific side effects of therapy are experienced?
How can the treatment of individuals with a cancer predisposition be improved?
What biological processes contribute to cancer development?

To explore these questions and gain valuable insights from individuals with CPS, we‘ve lunched several research projects and registries. This page offers a brief overview of our research efforts. For each topic, you’ll find a dedicated page with detailed information and background.

About Our Research

Click on the following boxes to navigate directly to our projects and registries!

CPS Registry

To gather more insights from individuals with CPS, we’ve established the KPS registry. Registration is open to people of all ages with any CPS subtype, including both children and adults.

Fanconi Anemia Registry

The Fanconi Anemia Registry (FA Registry), specifically designed for patients with Fanconi anemia, is part of the CPS Registry. Patients with FA of all ages can also register here.

ADDRess

Ten working groups have collaborated to enhance medical and psychosocial care, early cancer detection, diagnostics, and therapy for individuals with impaired DNA repair. This initiative is funded by the BMBF (Federal Ministy of Education and Research).

Liquid Biopsy

A liquid biopsy, which involves detecting tumor DNA circulating freely in the blood, aims to enable the early detection and monitoring of cancer development and progression in a less invasive manner.