We believe that a significant number of cancer patients develop the disease due to a genetic predisposition. However, there are many unanswered questions for individuals with Cancer Predisposition Syndromes (CPS):

  • What are the benefits of early detection as recommended by experts?
  • Are there correlations between genotype and phenotype?
  • What are the cancer risks across different age groups?
  • What is the prognosis for cancer in patients with a genetic predisposition?
  • What specific side effects of therapy are experienced?
  • How can the treatment of individuals with a cancer predisposition be improved?
  • What biological processes lead to the development of cancer?

To address these questions and gain insights from individuals with CPS, we have established several research projects and registries. This page provides a brief overview of our research efforts. For each topic, there is a dedicated page with detailed information on the content and background.

About Our Research

Click on the following boxes to navigate directly to our projects and registries!

CPS Registry

To gather more insights from individuals with CPS, we’ve established the KPS registry. Registration is open to people of all ages with any CPS subtype, including both children and adults.

Fanconi Anemia Registry

The Fanconi Anemia Registry (FA Registry), specifically designed for patients with Fanconi anemia, is part of the CPS Registry. Patients with FA of all ages can also register here.


Ten working groups have collaborated to enhance medical and psychosocial care, early cancer detection, diagnostics, and therapy for individuals with impaired DNA repair. This initiative is funded by the BMBF (Federal Ministy of Education and Research).

Liquid Biopsy

A liquid biopsy, which involves detecting tumor DNA circulating freely in the blood, aims to enable the early detection and monitoring of cancer development and progression in a less invasive manner.

Forschung braucht Unterstützung. Vielen Dank an dieser Stelle an die Deutsche Kinderkrebsstiftung, die mit ihrem tatkräftigen Einsatz so viel möglich macht!